The National Council for Women, represented by the Health and Population Committee, organized a symposium entitled & quot; rare diseases .. new hopes and challenges & quot; in the presence of Dr. Salma Dawara, the council member and the committee’s decision, and a number of members and members of the Health and Population Committee. The most vulnerable to rare diseases, and that only 5 % of rare diseases has been discovered for them, stressing that the narration of Egypt 2030 is working to provide a decent life for citizens, and from this standpoint was carried out in health, especially genetic and rare diseases. Genetic and rare to facilitate the possibility of treatment.
& nbsp; For genetic diseases and rare diseases and providing treatment, helps in the high possibility of survival of disability. & nbsp; & nbsp; & nbsp;
Dr. Azza Abdel -Gawad Tantawi, Head of Pediatrics, Hematology and Oncology, and head of the Egyptian Scientific Foundation for Rare Diseases for Children, explained, the challenges facing the medical team when dealing with cases such as the lack of a full date of the disease to inform him about diseases and treatments, and the patient’s psychological condition, stressing the need to early detection of genetic blood liquidity Women, to avoid the dependency of the disease and the need to raise awareness of this. & nbsp; & nbsp; & nbsp;
While Ayat Abu Al -Khair, CEO of the Foundation, explained an opportunity for a life opportunity to treat rare diseases, it is a charitable institution for rare diseases aimed at providing a life opportunity for every Egyptian and Egyptian infected with one of the diseases, rare and life -threatening, where & nbsp; Excessive ones. & nbsp;
Dr. Wael Ali, from the Medical Research Center for the Armed Forces, explained the efforts of the center in this file. The wrong diagnosis that may lead to delayed treatment.
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